Life to be lived : challenges and choices for patients and carers in life-threatening illnesses

Proot, Catherine. (Author). Yorke, Michael. (Added Author).

Record details

ISBN: 9780199685011 (pbk.)
ISBN: 0191508039 (electronic bk.)
ISBN: 9780191508035 (electronic bk.)
ISBN: 0199685010 (pbk.)
Physical Description: remote
xv, 160 pages ; 24 cm.
Edition: First edition.
Publisher: Oxford : Oxford University Press, 2014.

Content descriptions

Bibliography, etc. Note:

Includes bibliographical references and index.

Formatted Contents Note:

Machine generated contents note: pt. 1 patient experience -- 1. challenge of illness and pain -- Help me to live, not to stop dying -- Pain -- Curing and healing -- Stress provoked by treatments -- Psychological needs in treatment -- 2. All may not be lost -- Valuing patients as people -- Some personal sources of strength -- Absorbing interests -- Relationship and communication -- Supportive and/or challenging characteristics -- 3. Trials and adjustment -- Inner turmoil -- cancer journey? -- Longing for normality and yearning for safety -- network of support -- 4. Towards a changed outlook -- part of life one has not lived -- Discovering meaning -- sense of achievement -- Recognising one's identity and status -- pt. 2 impact on family carers -- 5. Demands on the family -- Diagnosis and its demands -- Logistics -- Finance -- Teamwork -- 6. Lives taken over -- Changing experience of time -- Priorities and decision making -- reality of unpredictability -- 7. Coping with change -- Denial and overprotection -- Interdependence and mutual impact -- Facing a new future -- 8. Some personal consequences for the carer -- Fatigue and self-neglect -- Guilt -- Loss -- Rewards -- pt. 3 professional carers and their roles -- 9. Challenges for the professional carer -- Patient-centred care -- Finding a common language -- Creating and holding a safe space -- Flexibility in approach and response -- Coping with a backlog of grief -- Taking care of themselves -- 10. power and limitations of words -- Beyond words ... metaphor and symbol -- metaphorical language of rituals -- Beyond communication, encounter -- 11. Talking with patients -- Breaking bad news -- Sharing information -- Helping people to be heard -- Talking about illness in the family -- 12. Chaplaincy and spiritual care -- role of the chaplain -- Caution not to impose -- Spiritual care as giving meaning -- Regrets and reparation -- Needs, spiritual and/or religious -- Overlap of roles -- Death and dying -- pt. 4 Boundaries and resources -- 13. Blurred boundaries -- Expectations and projections -- Shared responsibility -- Individual and institution -- Information and self-disclosure -- challenge of visiting the dying -- 14. wealth of resources -- From being the subject of suffering to an observer of pain -- Professional and peer support -- Hands-on involvement -- Ways to express feelings and find new meaning -- Intimacy -- Acceptance -- pt. 5 next step -- 15. next step? -- last great adventure -- Grief and bereavement -- In conclusion.